One Week In

Rosalie began her metronomic dosing of Accutane and Temodar a week ago. We are blessed that she is actually swallowing the gel caps and the capsules. We had some back up methods to use if she couldn't swallow the medication (emptying the capsule into pudding, drawing back the gel cap with a syringe). But she is getting the hang of this. It was pretty unpleasant at first, but now I think she has confidence in herself so she is okay with it. She has to swallow seven pills a day. So kudos to Rosalie!

Today I take her in for her first blood draw. She has no central line so she will need to be poked each time we need blood. I am a little worried that she will start to lose her love for the hospital. But maybe she'll get the hang of this as well. I will say that it's very nice to be sans central line. She can bathe and swim, and she is not at high-risk for infections.


Making ice cream with Dad

At Phoebe's recommendation we tried "Candy Cane Joe-Joe's" from Trader Joe's. Add them to ice cream! Delish.

Rosalie and Mark love their cold confection

I think Susannah liked it too!