Rosalie has had a fourteen day break from her meds. She begins the next 42 day course of Accutane and Temodar this morning. She hasn't had fevers since Thursday, so Dr. Banerjee feels comfortable starting a new round.
We are on the books for a March 24 scan - but obviously we are trying hard to get in sooner. The trouble is that there are only two days a week when pediatric anesthesia is available. And those appointments fill up very far in advance.
Rosalie is a joy. She and her sister have been very creative and playful. We are thankful for this very fun time in their development.
Saturday, February 28, 2009
Thursday, February 26, 2009
MRI Postponed
Rosalie spiked several fevers yesterday. She has some GI symptoms - but the main one is just that she is getting fevers with the chills. Perhaps she has some form of the flu. We went to our MRI appointment this morning because she has no respiratory symptoms. But the anesthesiologist said that she would only want Rosalie to go under anesthesia if the scan was urgent. And it is not urgent - it is a scheduled scan. She would have wanted to have had Rosalie admitted overnight to the hospital to monitor her oxygen levels if Dr. Banerjee had said the scan was urgent enough to go through with it.
So, we'll keep you posted. In the meantime, Rosalie is sicky and so we'll just make sure she gets rest and lots of fluids.
Hopefully we will schedule a scan for sometime in the next three weeks.
So, we'll keep you posted. In the meantime, Rosalie is sicky and so we'll just make sure she gets rest and lots of fluids.
Hopefully we will schedule a scan for sometime in the next three weeks.
Wednesday, February 25, 2009
Next Scan
Rosalie has an MRI of the brain and spine tomorrow morning at 7:30am.
Needless to say, I get very anxious the week leading up to her scans.
We pray for safe anesthesia and good news!
Needless to say, I get very anxious the week leading up to her scans.
We pray for safe anesthesia and good news!
Tuesday, February 17, 2009
Happy Birthday, Susannah!
Yesterday was Susannah's third birthday! We celebrated with a Mary Poppins party.
Our little Victorian gals
Mary Poppins, Jane Banks, Bert, and Mrs. Banks
Super Gigi Poppins paints the birthday girl's face
Super Gigi even knows magic!
And she makes twisty balloons too.
Happy Birthday!
Make a wish!
Sisters
Super Gigi Poppins, Mary Poppins, Bert
Our little Victorian gals
Mary Poppins, Jane Banks, Bert, and Mrs. Banks
Super Gigi Poppins paints the birthday girl's face
Super Gigi even knows magic!
And she makes twisty balloons too.
Happy Birthday!
Make a wish!
Sisters
Super Gigi Poppins, Mary Poppins, Bert
Tuesday, February 10, 2009
Dreams Come True
We just returned from a vacation to Florida where we saw Meema and Poppy Reibel in Miami, Nonnie and Poppy Struthers in Vero Beach, and Mickey and Minnie in Orlando. Rosalie's oncologist, Dr. Banerjee, gave us the green light to travel because Rosalie's counts have remained strong while on this metronomic chemo regimen.
I still have to sift through photos - but I wanted to get a few up on the blog ASAP.
The girls LOVED the show that was in front of Cinderella's Castle. It is called Mickey's Dream Along and at one point Mickey has the crowd cheering, "Dreams Come True! Dreams Come True!" The girls are still chanting away.
I still have to sift through photos - but I wanted to get a few up on the blog ASAP.
The girls LOVED the show that was in front of Cinderella's Castle. It is called Mickey's Dream Along and at one point Mickey has the crowd cheering, "Dreams Come True! Dreams Come True!" The girls are still chanting away.
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