We were able to take Rosalie home earlier this evening. She earned her ticket out the door by having no fevers for 24 hours and by showing the doctors that she was eating and drinking. It is so nice to have all four of us under one roof.
On another note, it has been getting harder to give Rosalie her oral chemotherapy. She is definitely "on" to the fact that it doesn't taste good. I have to say that in this journey having to administer our daughters chemotherapy has been one of the worst parts. I really hate it. It's like this constant reminder, this constant reminder of the cancer we are treating. And to see her look so disgusted when we put it in her mouth just makes me want to cry. It almost makes me mad that the pharmacist wants us to wear a mask and gloves when we prepare the chemotherapy, and yet we put it right into her little mouth so she can eat it. Even though the Cytoxan she receives is so toxic at the get-go, it is over after one hospital admission. The oral chemotherapy is 22 nights of facing the beast.
In times like these, when I realize the gravity of cancer and the possible side effects of its treatment, I ask for your prayers. Rosalie deserves to live cancer-free with no long-term side effects. Put it out there into the universe that this will be so.
Love, love, love,
Carolyn
12 comments:
We're so glad to hear that Rosie is home. It was great to be able to see you when we were in SF. We continue to be inspired by your strength and determination as you go through this painful journey. You are always in our thoughts and prayers.
Love,
Tara & Charlie
Carol -- our prayers are with you, Rosie, the whole family. You all deserve to be free of this beast. You can and WILL do it!!
Sending as much love and hugs through email as possible.
-Casey
PS -- how is Rosie's walking coming along? Did she get the fancy walker the therapist showed you?
I can't imagine how difficult it is, but as you give her the chemo, imagine you are giving her life in 22 doses, because that is what you are doing! Every dose is ensuring she will be perfect and healthy in the future. I am picturing her as a healthy normal and happy little girl with all the possibilities in the world in front of her. And she is wearing pink.
love nicki mullen/amatore
Hip, hip, hooray for home! You are an incredible mother, Carolyn, and the Reibels are a strong family. We are praying for a cancer-free Rosalie.
Love,
Sarah
hello reibel family, just would
like to let you know that our
prayers and thought are always
with you and your family.
Tony elisa marissa Bianka
You always have our prayers, always. Love Rob & Jenn
Sending lots of love, prayers, good thoughts, happy vibes, and healing strength to give Rosie the spirit to keep fighting hard and give you and Mark the courage to stand bravely by her side. You all are doing so great!! Keep it up!
Love,
Val
Great you are home again.
We will thinking of you and ROSALIE during these 22 nights.
Your team of doctors is wonderful
Love,
Catherine B.
Please give this innocent, beautiful little girl your special attention and heal her.
-Dirk
All four of you are always in our thoughts and prayers. You are all working together against this disease, and we are with you if only in spirit.
Ernie and Elsie
Hello Reibel family, So glad to hear that Rosie is home. May she stay healthy. And, to agree with other posters, you are giving her life in 22 horrible tasting doses. Good luck getting her to take the medicine! Lots of love and prayers and thoughts, Liana and Josh
She is home!!! Lets hope that as awful as the medication is, it restores her health and soon you all can put this behind. My prayers are with all of you and always hoping that Rosie keeps getting better and better. At time like this I wish I had a magic wand and make it all better....one day soon we will be celebrating being free of all this. Much love, Dinorah
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